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Author Topic: "Hallwang clinic" in Dornstetten  (Read 5154 times)

GdGy

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"Hallwang clinic" in Dornstetten
« on: October 07, 2016, 05:13:01 AM »

Es ist eine "private Onkologie Klinik" in Deutschland ... http://www.hallwang-clinic.com/de.html
Angebot: Homöopathie, Ozon, das übliche Quacksalberei.

It is a "private oncology clinic" in Germany ... http://www.hallwang-clinic.com/en.html
offering : homeopathy , Ozone, the usual quackery.
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GdGy

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Re: "Hallwang clinic" in Dornstetten
« Reply #1 on: October 08, 2016, 06:31:26 PM »

Anscheinend läuft ein Herr Albert Schmierer die Hallwang-Klinik ... https://german-medicalgroup.com/clinics/hallwanc-clinic/
Dieses Albert Schmierer ... https://www.q-potenzen.com/lmeuropa/servlet/Action?pageid=41&navid=2

Apparently a Mr Albert Schmierer runs the Hallwang-clinic ... https://german-medicalgroup.com/clinics/hallwanc-clinic/
This one ... https://www.q-potenzen.com/lmeuropa/servlet/Action?pageid=41&navid=2
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Thymian

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Re: "Hallwang clinic" in Dornstetten
« Reply #2 on: October 08, 2016, 08:25:13 PM »

Du meine Güte! Was ist das denn!? Da muß ich mir erst eine Mistgabel häkeln. Und das am Wochenende. Igitt.

Julian

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Re: "Hallwang clinic" in Dornstetten
« Reply #3 on: October 09, 2016, 01:51:50 PM »

Allerhuldigste, häkelst Du auch mit NATO-Draht?
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Thymian

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Re: "Hallwang clinic" in Dornstetten
« Reply #4 on: October 09, 2016, 06:58:24 PM »

Ich häkele nur mit NATO-Draht. Seit wann gäbe es denn etwas anderes!?

RadlMadl

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Re: "Hallwang clinic" in Dornstetten
« Reply #5 on: October 09, 2016, 11:04:09 PM »

Eine Axt wäre auch nicht schlecht. Da wartet einer schon ewig drauf.
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worelia

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Re: "Hallwang clinic" in Dornstetten
« Reply #6 on: October 11, 2016, 04:11:11 AM »

"Apparently a Mr Albert Schmierer runs the Hallwang-clinic ... https://german-medicalgroup.com/clinics/hallwanc-clinic/
This one ... https://www.q-potenzen.com/lmeuropa/servlet/Action?pageid=41&navid=2 "


Is there any evidence for that?
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Thymian

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SCHEISSSSSE !!!!!!!!!! "Hallwang clinic" in Dornstetten
« Reply #7 on: October 11, 2016, 10:00:26 PM »

https://www.gofundme.com/2r2kwanw

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Hi All

Thank you for visting this page for my beautiful partner, Ali's battle with, what doctors have labelled, terminal cancer.

To many she is known as Leah Bracknell, and has enjoyed a 30 year career on TV and stage, and is best remembered for portraying Zoe Tate in Emmerdale for sixteen years. To others she is a yoga teacher who has inspired thousands.

To us, she is Ali, wonderful mother of two, loving partner and daughter. We desperately hope that we , her friends and loved ones, can raise the funds she needs for a potentially life saving treatment. Time is of the essence. Here is a bit of her story, in Ali's own words.

‘Just over 5 weeks ago. I was feeling perfectly well, fit and healthy. Teaching yoga classes and workshops, it was a time of new beginnings : preparing to move house, youngest child fleeing the nest, and excited to be starting rehearsals for a comedy play, being back onstage, going on tour.

But, it turns out that the universe had other plans. Life was about to be unexpectedly turned on its head.
I began to feel breathless climbing stairs. Really breathless. I just put it down to a bit of stress. My abdomen suddenly ballooned- and within a matter of a few days I looked heavily pregnant. I could barely walk or breathe. Then, one Saturday night at the beginning of September I ended up in A & E.

Following a difficult and terrifying night (my heartbeat rose to 180 beats a minute!) I was subsequently given an emergency procedure to remove a large amount of fluid from around my heart, by a very handsome cardiologist from Slovakia. ( Jez really can't see it!)
I was told later, without that, I would have died. So I am beyond grateful. Without it, I would not be here, enjoying the Autumn sunshine, watching the leaves change colour, settling into our new home. I would not know either quite what brilliant, generous and loving friends and family I have.

However, the bad news is that I have been diagnosed with lung cancer, stage 4. In their opinion, that means it's  terminal, not curable, not operable . A fairly brutal and bleak diagnosis but one I am determined to challenge and see from the perspective of "a glass half full", going against a lifetime of pessimism, negativity and fear!!!!

By the way, please imagine me writing this and speaking in quite an upbeat and cheerful voice. Do NOT imagine me sitting here writing through a veil of tears. I am not. Or feeling sorry for myself. I am not (yet).

My priority is getting well and strong, so that I can continue to endeavour to be a good, mother, daughter, wife, or at least the best I can be.
My priority is to defy expectation.
My priority is to love, to laugh, and, as Bob said, to "keep on keepin' on".

With all my heart and armfuls of blessings. I thank you for reading this.'

As you can see, Ali has responded with incredible positivity and determination, like she has throughout her life, being an inspiration to others. This has already had a positive impact on some of her results.

Having done a lot of research, we have found there are incredible breakthroughs being made in the field of immunotherapy and integrative medicine, which are seeing previously 'incurable' cancers going into complete remission. A clinic in Germany called the Hallwang clinic is leading the way in this. The downside is that these cutting edge treatments aren't yet available on the NHS outside of clinical trials, most of which Ali doesn't qualify for, and are very expensive.

Due  to difficult personal circumstances , Ali / Leah has been unable to work in her chosen profession of acting for a number of years which has seen a big drain on her resources. Understandably, she is unable to continue acting or teaching right now.  This is why we are fundraising here.  Away from acting she has volunteered her time and energy for a local homeless charity and recovery project cooking and teaching meditation, she has touched and transformed the lives of many  people through yoga and her work as a healer.

We are looking to raise the money to visit the Hallwang clinic in Germany and help go towards the costs of Ali's treatment, to give her the best possible chances of not only survival, but to thrive. This is an initial target for a first visit and round of treatment, depending on how she responds, more visits may be needed and costs may rise.

Over the years she has given so much to so many. As an award winning actress  and the first lesbian in soap, she helped raise awareness of LGBT issues and later her sensitive portrayal of a Schizophrenic breakdown, brought a lot of attention to mental illness. Her yoga DVD Yoga & You inspired many people onto the path. She still feels she has so much to give and share, not just those she loves, but through her teaching and healing work.

To me she has given love, patience, kindness and shone an incredible light in my world. We want to make sure the light she shines radiates for a long time yet, and are all determined she can beat this.

Thank you so much for taking the time to read this, please donate generously if you can to help fund this potentially life saving treatment. We will be eternally grateful.

Jez and Ali xx
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Hayley Kalinins
5 days ago
47
Leah, My name is Hayley and i have been treated at the Hallwang Clinic in Germany since Easter. I'm from Derby, UK. My Facebook page is Hayleys Cancer Fight and my go fund me page is Hayleys Cancer Treatment fund. If you would like to get in touch so i can help with any advice and questions about the Hallwang and some of their treatments. I'm happy to chat if you would like to speak to someone who understands send me a message through my Facebook page! The clinic is a truly amazing place and i had fantastic results after just 8 weeks of treatment. Please get in touch if you wish. Hayley xxx

+ Read More

Shatners Bassoon
4 days ago
21
Surely the Emmerdale producers will help?


Cal Moriarty
4 days ago
13
Hi Ali: have you contacted Professor Christian Ottosmeir at Southampton General hospital he is running a clinical trial via the NHS in immunotherapy treatment specifically for lung cancer. My mother in law had it for 7 months, it was working then stopped. I think they said it works 80% of cases??? They test you first to see if you have the right kind of DNA for it as it can't work for everyone. Please give him a try before you head off to Germany. Very best of luck with it. My mother in law had same diagnosis as you and she is still going over 3 years later and she is almost 80.

+ Read More

Gemma Hill
5 days ago
13
Have you thought about cannabis oil its supposed to work


Mavis Nye
4 days ago
8
Leah Please get in touch with Lecester Hopital where a new trial is going to start of Keytruda and Verastem's drug and never ever give up Positive always xx http://www.pharmatimes.com/news/msd,_verastem,_cr_uk_to_trial_new_immunotherapy_combo_1151262


Darren Mutch
5 days ago
6
Hi Leah,saddened to hear your news if I can be of any help please get in touch,My father is currently being treated at the Hallwang clinic and will be there for the next Month There's a patten forming here with the NHS giving up on people. I wish you all the very best regards Darren Mutch here's my fathers story. https://www.justgiving.com/crowdfunding/hopeforkennethmutch?utm_id=2&utm_term=8mPBZrkAW

+ Read More

Jacqueline Marie
4 days ago
5
Good luck Leah with all my heart I wish u well ❤️


Caz Van Plaggenhoef Halls
5 days ago
5
Unfortunately I lost my husband to this cancer in December 15, but what I have learnt is that there is a breakthrough in the uk. ....... Keytruda which is at the Royal marsden and other hospitals and nivolumab... The is the first cure from keytruda. Mavis nye please look her up on google ...if you can't get to Germany it's better to try closer to home and get treatment ASAP. Hope this helps.


Debbie Paterson
4 days ago
4
Leah sorry to hear about your Cancer Diagnosis I send all the love in world to you and you family keep strong take care love Debbie xxx


Reece Slater
4 days ago
3
Leah my name is Reece and I was really upset not to see you in Nobody's Perfect the other day at Blackpool Grand theatre. Where the only information I could find out was that you had taken ill. If you speak to the other cast members they could probably tell you how upset I was. But I now know the upset I felt pails into insignificance when I think of the upset and pain that you, your friends and family must be feeling at this time. My heart felt sympathy goes out to you and although who are blessed with knowing you in their personal lives and all those whose lives you have touched in so many ways. I really hope that the cast and crew of Nobody's Perfect are insisting that they have a collection at the end of every production in every venue they are performing at from now till the end of the tour. Once again with all my heart and compassion I am sorry to hear this news and may you reach your target and much more and continue to bless many more people with all your kind works.

+ Read More

Nick Globs
4 days ago
3
Hi Leah, Going through the same nightmare (lymfoma), someone pointed out the unbelievable effects of injecting vitamin c to fight cancer. I am investigating! https://www.youtube.com/watch?v=vTXSTGGRvKY


Gem Price
4 days ago
3
Sending lots of love, good vibes, hope, prayers & well wishes to you and your family. Kick Cancers butt Leah! We know you can do it xxx


Robert Sheldon
4 days ago
3
Hi Leah, My father was diagnosed with terminal cancer. Mesothelioma caused by asbestos. There is a Professor Vogl at the University Hospital in Frankfurt pioneering a treatment involving chemoembolisation which helped my father. Unfortunately we started the treatment too late to make a real difference but it did give him much longer with us than he would have had otherwise. Please consider looking into this treatment if it is still available. I have professor Vogl's email address if you would like it.

+ Read More

John Fennessy
4 days ago
3
Please look up 'dandelion root' and the help toward feeling better when up against cancer!


Richard Brown
4 days ago
3
Hi there really saddened to hear of this devastating news, I have done a lot of research into alternative treatments, at the end of the day everything is worth a try, I have made lots of contacts in alternative treatment, please inbox me if interested or if not at the very least I can share your page if you wanted to my 50k customers on my facebooks and let's see if we can raise some money, my number is 07894 252530 if you wanted a chat.


Gemma Jones
4 days ago
2
Have you looked into Cannabis Oil, very very effective.


Karen McDermott
4 days ago
1
Hi Leah/Ali I am sorry I can't donate at the moment. I too have stage 4 terminal breast cancer and have my own go fund me page. I hope you hit your target and that you get the treatment that you so desparetly need. If it is ok with you I will share your page...please could you share mine. Lots of love Karen


Jill Stirling
4 days ago
1
Really hope you reach your goal. You are an inspiration to others. Sending healing vibes and all the luck in the world in your fight to beat cancer. Xx


Susan Owen Bates
4 days ago
1
I'm from the charity Balls To Cancer and would love to offer you a break at our Burnham on Sea, Haven caravan. Park closes for the 2016 season, end of October and reopens April. If you would be interested please let us know. It won't let me post email address but we are on face book and Twitter


Betty Blue
4 days ago
1
Oasis of Hope - Mexico. Good Luck xxxxx

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Der Patiententourismus muß endlich aufhören. SOFORT!

FRAUENPOWER

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Re: "Hallwang clinic" in Dornstetten
« Reply #8 on: October 12, 2016, 04:28:48 AM »

Mehr Nato-Draht! Sofort!
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GdGy

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Re: "Hallwang clinic" in Dornstetten
« Reply #9 on: October 12, 2016, 09:43:22 AM »


worelia wrote  "Is there any evidence for that?"

http://transgallaxys.com/~kanzlerzwo/index.php?topic=9113.msg21463#msg21463


The website of homeopathy-makers "q-potenzen.com" is registered in the name Albert Schmierer ... http://whois.domaintools.com/q-potenzen.com

According to domaintools, only 8 websites are registered in the name Albert Schmierer ...

"q-potenzen.com", " zinsser.at", " zinsser.biz", " zinsser.ch" " zinsser.info"
( "Dr [Albert] Zinsser Pharmaceuticals"  is  "q-potenzen.com" ).

The other two websites registered in the name Albert Schmierer are  "hallwang-clinic.com" , "hallwang-klinik.com"

A "Dr Albert Schmierer" ...

"... is also the chief pharmacist for mitochondrial and homeopathic therapy at the Private Hospital Dr Ursula Jacob GmbH as well as the owner and CEO of Dr Zinsser Pharmaceuticals"
http://www.zell-v.com/html/medicalpanel-dralbert.html


Apparently the "Private Hospital Dr Ursula Jacob GmbH" is Hallwang[en] Clinic ...

"Dr Jacob is now the proud founder and owner of the Private Hospital Dr Ursula Jacob GmbH in Hallwangen, Germany, specialising in cell therapy and homeopathy ..."
http://www.zell-v.com/html/medicalpanel-drursula.html
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GdGy

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Re: "Hallwang clinic" in Dornstetten
« Reply #10 on: October 12, 2016, 10:01:33 AM »

The "Private hospital" changed its name from "DR. URSULA JACOB GMBH" to "HALLWANG CLINIC GMBH" in 2014 ...

"HALLWANG CLINIC GMBH * Previous name: DR. URSULA JACOB GMBH until 12/05/2014"
http://orbisdirectory.bvdinfo.com/directory-EJFJHICIDIAIDIDIHIAIBIBI.urk
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GdGy

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Re: "Hallwang clinic" in Dornstetten
« Reply #11 on: October 12, 2016, 03:50:55 PM »

I see "Dr. Ursula Jacob" had a famous Hollywood film-star as a patient : "Farrah Fawcett" ...

"Treatments in Germany
Ursula Jacob of Germany's Alpenpark Clinic has treated Fawcett. In an interview with Access Hollywood, Jacob says that, in Germany, Fawcett was given "natural supplements and also immune treatments" that were tailored to her specific case".

http://www.webmd.com/cancer/news/20090515/farrah-fawcetts-german-cancer-care

https://en.wikipedia.org/wiki/Farrah_Fawcett
Farrah Fawcett died the same year that article was published, 2009

Readers of German would be better able than I am to check out the medical license "Dr. Ursula Jacob".


[URL made visible, OM]
« Last Edit: October 12, 2016, 11:51:46 PM by Omegafant »
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GdGy

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Re: "Hallwang clinic" in Dornstetten
« Reply #12 on: October 12, 2016, 04:28:25 PM »

"Zell-V" allegedly anti-aging treatment, is cells from sheep-placenta ...

" Zell-V’s international medical advisory board includes renowned regenerative medicine professionals such as GSTT president Dr
Helmut Brammer, Dr Zinsser Pharmaceuticals CEO Dr Albert Schmierer,  Dr Jacob antiageing hospital owner Dr Ursula Jacob and Dr Ulrich Friedrichson PhD, owner of Private Hospital Friedrichson in Germany. Antiageing doctors prescribing Zell-V are already in the 100’s throughout South-East Asia".

https://inspirebn.files.wordpress.com/2016/01/inspire-2nd-issue-lr.pdf

One way or another, "Zell-V" customers will feel sheepish  ;D
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Omegafant

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Re: SCHEISSSSSE !!!!!!!!!! 'Hallwang clinic' in Dornstetten
« Reply #13 on: October 12, 2016, 08:40:54 PM »

Thymian:
>SCHEISSSSSE !!!!!!!!!! "Hallwang clinic" in Dornstetten
>« Reply #7 on: October 11, 2016, 10:00:26 PM »

https://www.gofundme.com/2r2kwanw

This is disturbing. In some few days a yoga idiot from TV gets over 56k Pounds. On the other hand normal people during months only get some few hundred Dollars. This really is disturbing as it shows how sheep-like narrow-minded people are: blinded by some hyped shit on TV they hail TV "celebrities". This really is disturbing. Normal people do not count. Normal people can shoot themselves.

That very yoga idiot is one of those people who are responsible for the wave of esoteric idiocy spread by TV. Is it some case of justice now? No, since most of these idiots get rich and old. And I am sure that she got a lot of money during her TV time, more money than normal people ever have seen in all their lives.

Why are the gofundme orgies not restricted to really poor people? If you ask me: gofundme stinks.
« Last Edit: October 12, 2016, 08:43:28 PM by Omegafant »
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Steine kann man nicht essen!

GdGy

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Re: "Hallwang clinic" in Dornstetten
« Reply #14 on: October 12, 2016, 10:38:51 PM »

Omegafant wrote "Why are the gofundme orgies not restricted to really poor people? If you ask me: gofundme stinks".
http://transgallaxys.com/~kanzlerzwo/index.php?topic=9113.msg21485#msg21485

It stinks even more than that : http://archive.is/WF3Qb#selection-497.0-497.103
GoFundMe own rules say they don't allow fundraising for non-FDA approved products & services]
Some, possibly all, the treatments at Hallwang & Hope4Cancer clinics are not FDA approved.
GoFundMe turn a blind eye to their own rules for 5% of donations.

[URLs made visible. OM]
« Last Edit: October 12, 2016, 11:48:55 PM by Omegafant »
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GdGy

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Re: "Hallwang clinic" in Dornstetten
« Reply #15 on: October 12, 2016, 10:41:00 PM »

Whilst we are on the vulgar subject of money, here's what Hallwang clinic charges ...

"The first two weeks cost £58,000 and the third week of treatment another £30,000".
https://www.facebook.com/Dominiccancertreatment/posts/640499626115664
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GdGy

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Re: "Hallwang clinic" in Dornstetten
« Reply #16 on: October 12, 2016, 11:05:17 PM »

I made a slight mistake here: http://transgallaxys.com/~kanzlerzwo/index.php?topic=9113.msg21479#msg21479
( I'm not allowed to edit my posts  :'( ).

The Uncle of Hallwang Clinic's Albert Schmierer was called Dr Friedrich Zinsser, (not Albert Zinsser).
https://www.google.com/search?q=%22Dr+Friedrich+Zinsser%22+homeopath+T%C3%BCbingen
Apparently he was a big-cheese in the world of homeopathy


[URLs made visible. Embedded URLs not wanted here. OM]
« Last Edit: October 12, 2016, 11:47:28 PM by Omegafant »
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Omegafant

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Re: "Hallwang clinic" in Dornstetten
« Reply #17 on: October 12, 2016, 11:44:42 PM »

GdGy wrote: "I'm not allowed to edit my posts"

There is a red line: WE --- they.

WE rule here.

They are allowed to write. It is not a right. It is a privilege.

This is the toughest forum in the whole Net. We are not called this for nothing.
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Steine kann man nicht essen!

Omegafant

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Re: "Hallwang clinic" in Dornstetten
« Reply #18 on: October 12, 2016, 11:55:07 PM »

GdGy wrote:
>The website of homeopathy-makers "q-potenzen.com" is registered in the name Albert Schmierer ...
> http://whois.domaintools.com/q-potenzen.com

The name itself is problematic since many people share the same name. The WHOIS is not a valid tool for identifying a person only by name. Aside of name other details must be checked. Using a name is only a first approach.
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Steine kann man nicht essen!

Omegafant

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Re: "Hallwang clinic" in Dornstetten
« Reply #19 on: October 13, 2016, 12:13:10 AM »

GdGy wote:
>Re: "Hallwang clinic" in Dornstetten
>« Reply #15 on: October 12, 2016, 10:41:00 PM »
"Whilst we are on the vulgar subject of money, here's what Hallwang clinic charges ...
"The first two weeks cost £58,000 and the third week of treatment another £30,000".
https://www.facebook.com/Dominiccancertreatment/posts/640499626115664 "


So it were £ 88,000. But that is really cheap. To buy a life for only £ 88,000 is really cheap. Unless you don't have  £ 88,000, because then your life is really cheap...

The dichotomy is with the people who shoot at the industry, at the pharma mafia, at the school medicine mafia, because the mafiosi are only interested in cash. And here they do not object any sum, under what moon ever it was brewed...

Alternaive medicine is only for the rich. Like Mc Queen. Like Jobs. Like Fawcett. Which underscores how dumb these people actually are, and which underscores who the frauds aim at: a tiny group of wealthy stupid people. They call the process of filtering out the unwanted "screening".  Checking their prey. Finding the gullible. Doublespeak in real use.

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Steine kann man nicht essen!

GdGy

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Re: "Hallwang clinic" in Dornstetten
« Reply #20 on: October 13, 2016, 08:23:26 AM »

Omegafant wrote "WHOIS is not a valid tool for identifying a person only by name ... Using a name is only a first approach".
http://transgallaxys.com/~kanzlerzwo/index.php?topic=9113.msg21492#msg21492

Yes I understand : there could be more than one "Albert Schmierer".

Omegafant wrote "other details must be checked"

http://transgallaxys.com/~kanzlerzwo/index.php?topic=9113.msg21492#msg21492

There is confirmation : the "Albert Schmierer" who is CEO of the homeopathy company "q-potenzen"/"Dr Zinsser", is also the "chief pharmacist" at "private Hospital Dr Ursula Jacob" in Hallwangen, see ... http://www.zell-v.com/html/medicalpanel-dralbert.html  . Since 2014 that  "private Hospital" is called "Hallwang Clinic" ... http://orbisdirectory.bvdinfo.com/directory-EJFJHICIDIAIDIDIHIAIBIBI.urk

It is the same "Mr/Dr Albert Schmierer" in Hallwang Clinic & "q-potenzen": they are both the same homeopath.

I'd be interested to see what Albert's alleged doctorate is in, similarly the alleged doctorates of his associates shown here ... http://www.zell-v.com/html/medicalpanel.html . My inability to read German is making it difficult for me to check which, if any, has real medical degree, and a license to practice medicine.
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GdGy

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Re: "Hallwang clinic" in Dornstetten
« Reply #21 on: October 13, 2016, 08:56:05 AM »

Omegafant wrote : Alternaive medicine is only for the rich.

Not true : there is [useless] homeopathy online & in supermarkets for under $10,
e.g. https://www.amazon.com/Single-Homeopathic-Remedies/b?ie=UTF8&node=3767781

Rich & famous customers are doubly-valuable to quack clinics : their high-profile can be exploited to publicize the clinic to generate more business.
A legitimate physician would not discuss their patient's treatment with the press, as Hallwang's Dr Ursula Jacob did ... https://www.google.com/search?q=%22In+an+interview+with+Access+Hollywood%2C+Jacob+says+that%2C+in+Germany%2C+Fawcett%22
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scepticon

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Re: "Hallwang clinic" in Dornstetten
« Reply #22 on: December 04, 2018, 09:07:15 AM »

I think there should be a bit more differentiation in regard to the Hallwang Clinic. The Hallwang Clinic (Synonym: Hallwang Private Oncology Clinic) belongs to the so-called board-certified private oncology clinics, located in Dornstetten, Germany, using the campus buildings at the Silberwaldstr. 45. The Hallwang Clinic claims to be unique in the field private oncology clinics, "navigating in a collaborative university institute and hospital network, combining cutting-edge patient individualized precision cancer therapies - utilizing guideline-approved therapies based on Next-Generation-Sequencing (NGS), Exosome and Immune-profiling/prediction, and being able to evaluate and coordinate personalized cancer therapies." The Hallwang Clinic furthermore presents to utilize so-called supportive and supplementary integrative therapies.

The History of the Hallwang Clinic
A lot of articles have been published about the Hallwang Clinic also in this blog - and the most recent literature has cleared the confusion criticism about the connection to the "Privatklinik Dr. Ursula Jacob", the "Waldeck Klinik" and the "Hallwang Clinic". Impressive that so many clinics have used the campus - but obviously the 3 clinics, although completely different, have just been located in the same buildings. The "Waldeck Klinik" was a former rehabilitation center and the "Privatklinik Dr. Ursula Jacob" was a former alternative clinic that was criticized for its alternative therapies.

2014 many things might have changed. The Hallwang Private Oncology Clinic (since 2014):
Since 2014 it appears that a completely new team of board-certified oncologist has taken over the former buildings of the previous clinics that have been mentioned above. Now, the Hallwang Clinic seems to fight against the past of their buildings, as the new clinic faces many predjudices and criticisms associated with the former alternative clinics. One might be surprised about the high number of cases the Hallwang Clinic publishes itself or are published through independent websites. There are indeed many case reports that have been published since 2014 on the Hallwang Clinic website and the social media. Here it appears, that the Hallwang Clinic might have indeed access to comprehensive cancer therapies that seems to lead to long-term remissions in challenging Stage IV cancer patients, including published cases on independent websites, on TV and social media. Following the cases, one can see that some of the patients have unfortunately passed away in the meantime. Furthermore, it appears that the clinic is taking care of internationally re-known politicians, musicians and actors. A more recent famous patient at Hallwang Clinic seems to be the English actress Leah Bracknell. And other Hollywood stars have been recently mentioned in the international press in the context of the Hallwang Clinic as well.

"Alternative" Cancer Clinics in Germany
Most of these alternative clinics in Germany, if not all, do not have board-certified oncologist taking care of their cancer patients. Obviously, this leads to a conflict of interest between the treating non-oncology physician (i.e. naturopath, general practioner, gynacologist, pathologist etc.) and the cancer patient. The cancer patient is usually looking for the best treatment options, not necessarily for only the guideline approved protocols, but at least for an advice by a specialist who is knowledgable about all treatment options, including the guideline approved protocols and the so-called holistic or alternative therapies. Unfortunately, most of the alternative clinics that claim to provide a comprehensive view are very much limited due to the lack of qualifications, leading to combinations of naturopathic, alternative therapies and/or immunotherapies without beeing qualified as a board-certified oncology clinic. There are plenty of these examples, and cancer patients should be highly advised to look for the qualifications of a board-certfication for oncology in Germany, because it appears that in Germany it seems to be possible that non-board-certified oncologist treat oncology patients.

"Pseudoscience" versus "Personalized/Precision Cancer Therapy" and "ImmunoOncology"
For most of us readers, everything that is not approved by our medical agency appears as some kind of so-called "pseudoscience", or with other words therapies with "lack of evidence" - and "evidence based medicine" is used as a keyword for the best cancer therapies currently available/approved. Nowadays, one could indeed challenge this view, since personalized/precision based cancer therapies show very promising results for the individual, highly recognized in the field of oncology, including immune-oncology. It appears the the German medical regulations allow the oncologist to certain degree to consider so-called off-label use therapies which might be the reason why so many patients are traveling to Germany for these so-called "personalized" therapy options.
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Thymian

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Re: "Hallwang clinic" in Dornstetten
« Reply #23 on: December 04, 2018, 07:49:42 PM »

White-washing!? Eyh, we need some more barbed wire.  8)

Just these very days the Hallwang folk got a bashing after someone obviously related with them tried to mess up the RationalWiki. Seems we have to push that story.


Here it is:
 

https://rationalwiki.org/wiki/Talk:Hallwang_Clinic

[*quote*]

Information icon.svg    The 2018 moderator elections
Results!
Talk:Hallwang Clinic
Complaints from someone supporting the Hallwang Clinic

It appears that some members of Rationalwiki have the right to protect misleading non-rational information and details about certain subjects I came across and finally corrected. My question here at Rationalwiki is the following: A critical view is based on information and not false information - why articles get protected after one has corrected the false content? — Unsigned, by: Gnotlin / talk / contribs

    @Dysklyver why did you protect Hallwang Clinic? --It's-a me, 🎄LeftyGreenMario!🎄(Mod) 21:43, 3 December 2018 (UTC)

        An anonymous editor added a lot of text to the article that was poorly written, poorly formatted and contained no references. The edits appeared to be an attempt to whitewash the article. Given the poor quality of the edits the changes were reverted multiple times by @Dysklyver and other editors, including @GrammarCommie and myself. After several weeks of this drive-by editing, apparently Dy had enough and protected the article. Cosmikdebris (talk) 22:20, 3 December 2018 (UTC)

            I don't think Gnotlin has made the same edits, and the user has retained important information that the other editors failed, yet the user's edits were also reverted. That's my observation so far. --It's-a me, 🎄LeftyGreenMario!🎄(Mod) 22:38, 3 December 2018 (UTC)

                If there was evidence backing up Gnotlin's claims, I would have checked them out. In the absence of references I assumed it was vandalism and/or whitewashing and would have done the same thing Dy did in this case, given the past edit history. Let Gnotlin bring his or her claims to the talk page so we can understand the context. Cosmikdebris (talk) 22:47, 3 December 2018 (UTC)


                    Please excuse my English as a non-native speaker - nevertheless I like your platform and would be happy to contribute further also about other topics than the Hallwang Clinic. There are indeed many so-called alternative clinics in Germany that deserve a disrespect due to the misleading practice of non-board-certified oncologist pretending to provide cancer patients a proper oncological second-option without themselves fulfilling the minimal criteria of a qualified evaluation as specialist and board-certified oncologists. And I would be happy to continue this topic at a later time point. There are many international patients who have the impression to be treated by an oncologist at these alternative clinics but ultimately these are just general physicians. - a topic for itself and a hugh problem. As I said I like you platform and the aim of it. Thank you for your feedback Dysklyver, and I want to make it easier to understand my position - hopefully this leads not directly to any prejudices - I didn't intend to delete any information that another one has provided- it just aimed at organizing the details - as you can see all the criticism hasn´t been deleted. I just added further valuable information and I would be happy to provide even further information. I want to add that I'm one of the medical team members from the Hallwang Clinic, myself a board-certified oncologist and member of the German and European Society of Hematology and Oncology. After several years in immuno-oncological clinical research at the Dana Farber Cancer Institute in Boston and a long working period at the comprehensive cancer center Cologne/Bonn in Germany, part of the University Hospital Cologne and the University Hospital Bonn I have been asked to join a team of board-certified oncologist at the Hallwang Clinic. The Hallwang Clinic is a board certified oncology clinic with the idea of a clinic that tries to provide a nearly unlimited spectrum of oncological analysis and therapeutic protocols in close collaboration within a university hospital network. That means that of course the center of dicissions at the Hallwang Clinic are guideline approved therapeutic options - but this should not exlude the strength that we are today able to use personalized oncological therapeutic approaches. Unfortunately, words like "personalized" or "individualized" as as well "immunotherapy" have been misused by alternative clinics to pretend any qualified evaluation for their indeed quackery therapeutic options. The Hallwang Clinic is different to these alternative clinics, not only that we are a governmental board-certified private oncology clinic, we are able to consider and to perform individual modern biomarker or mutational expression pattern analysis for the discussion and evaluation of cancer therapies, including next-generation sequencing data, immune profiling/prediction, tumor mutational burden etc.. Indeed the Clinic is open about supplementary and supportive remedies and this might also come from a certain minimal influence of the history of the building in which we are located, but the main reason is that for a comprehensive therapeutic evaluation and following the idea of an open-minded oncology clinic the knowledge should be also present about these kinds of therapies that surprisingly - even though only partially getting considered being beneficial for cancer patients - as. i.e. one has maybe been quite negative about vitamin substitutions in the past for cancer patients and titled these substitutions as quakery but looking at new (now even quite old) peer-reviewed convincing data about vitamin D substitution in lymphoma patients, we currently see that this is getting a very conventional approach now to consider this. So, this as a simple example of things that sound quackery - primed by our past - but are not anymore. The Hallwang Clinic is indeed facing strong prejudices and false information about therapies that are getting applied at the Hallwang - although this only refers to a clinic that has used the buildings prior to the development of the Hallwang Clinic. The Hallwang Clinic is since 2014 a completely new team of oncologist after the Dr. Ursula Jacob Privatklinik to my knowledge was closed and re-located near to Munich. Besides the fact that one is making a mistake to put the Hallwang Clinic into the same pot as an alternative clinic as wrong it is that we are using RGCC. The new Team at the Hallwang Clinic has re-evaluated Test from RGCC and we came to the conclusion that RGHCC is not fitting our quality-critirias in regard to analyze circulating tumor cells or provide any useful information for the proper evaluation of cancer therapies - as we navigate in a university institute network - we are proving only valid analytic tools provided by university intistutes, as i.-e. the University Institutes in Tübingen and Cologne - lighthouse in pathology, particularly leading the filed of next generation sequencing. My text might be poorly written and poorly formatted - but I'm also not an specialist in the field of writing on websites. - please excuse. Nevertheless - I think the article that you have writing is correct about clinics that operated or still operate like the Privatklinik Dr. Ursula Jacob - but maybe we can find a critical evaluation and debate what would be a more informed and indeed correct article about the Hallwang - without deleting any of the criticism that is present about the Hallwang Clinic. — Unsigned, by: Gnotlin / talk / contribs Gnotlin (talk) 01:22, 4 December 2018 (UTC)

    Are you trying to inform us about this clinic or sell it to us? ☭Comrade GC☭Ministry of Praise 23:41, 3 December 2018 (UTC)

        I think they want to sell it to us. ^_^ This message is approved by Dysklyver Gears.png Ensign of the Duke of Cornwall.svg (brebmyn) 23:57, 3 December 2018 (UTC)

    Basically this diff shows the article had been completely rewritten to effectively remove any idea the clinic is dodgy as hell, while adding a lot of stuff about how great the clinic is and something about board certification. The article has been repeatedly rewritten to this effect by numerous editors (SPA's in Wikispeak) none of which have any interest so far in other articles (as evidenced by the fact they now can't edit the article at the lowest protection setting which anyone with a few edits can bypass).
    After reading the enormously detailed monologue above, I understand it is actually the new staff of the clinic trying to remove embarrassing mentions of their clinics quackery and improve their image, and then when that failed, trying a similar image improvement by leaving the mentions but blaming everything on a former staff member who makes a handy scapegoat. The end result of whitewashing the article into a half-baked advert is much as would be expected from someone trying to do public relations image work.
    Anyway, the evidence so far put forward suggests that the clinic still offers (or did very recently) the same dodgy treatment as it always has and this criticism is likely to be valid, this article for example is only a few months old and suggests the majority of the content changes are bollocks. If these changes are infact legit, then lets see some actual evidence (web-links, or if not on the web, my email is on my userpage and you can send me stuff) and then we can go from there on deciding if Hallwang Clinic is indeed the reformed institution Gnotlin suggests, or still the centre of quackery it seems to have been in the past. ^_^ This message is approved by Dysklyver Gears.png Ensign of the Duke of Cornwall.svg (brebmyn) 23:57, 3 December 2018 (UTC)

                this is a fair offer to start at least somewhere. I will email you - maybe there is also a chance that you call me or I call you - anytime to provide you a full picture. We can also go through your citations- most of them referring to Ursula Jacob and then connected with the Hallwang Clinic. Then your blog entries of a former patient who lived long-term with stage IV colorectal Cancer citing him as being " at the beginning positive" and later XXXX - here you can see that you have overseen that the patient is referring to completely different clinic and physician namend in his blog Dr. Kilarski (?)- he was obviously at the Hallwang Clinic but then decided to use somewhere a GcMAF dodgy treatment. To comment on your citation on respectful insolence would indeed take more time, ...so lets discuss- I think it is a good platform to discuss a critical but also true article - and not just false connections and misleading information - and the end it will have more valuable information. — Unsigned, by: Gnotlin / talk / contribs Gnotlin (talk) 01:22, 4 December 2018 (UTC)


                just since its still quite early in Germany: Oh by the way, you should read and follow the following website providing you an idea why it is so important to look at the details of complicated cases- very talented author : tryingtobeatcancer.org.uk

                Let´s look at your introduction of the Hallwang Clinic article:

"Hallwang Clinic is a private medical facility in Dornstetten, Germany, specializing in integrative cancer treatments." Gnotlin (talk) 01:09, 4 December 2018 (UTC) The Hallwang Clinic is a board-certified oncology clinic. Board certified means that the clinic is run by the government certified, so-called board-certified, oncologist. - with simple words: specialized oncologists. This is indeed a major difference which needs to be mentioned - a major difference to all the alternative clinics in Germany since they are run by mainly or even exclusively naturopath or general practitioners, maybe internal medicine specialist- so an important difference. Since if you have no board-certification you are lacking the qualification as an oncology clinic. Is the Hallwang Clinic "specialized in integrative therapies" - for sure not. But I leave you here with the criticism abut alternative therapies, since the clinic is indeed open-minded to listen to patients who unfortunately got mislead by "alternative clinics". A real example: Just imagine a young adult having the chance of a long-term remission even a curative approach by guideline approved therapies... contacting the Hallwang Clinic, feeling not taken seriously by his "purely conventional guide-line approved thinking oncologist" who gave him some minutes of time to think about HighDose Chemo with Stemcelltransplant- now searching for advice and telling us in first telephone conversation that an alternative clinic has offered him a pure alternative therapy to chemo and he is now planning to go there. The reason why this patient is now, years later, still alive is because he saw that we are open-minded about, let's call them, supplementary therapies, which the patient demanded to have - but on the other hand we were able to convince him in a more than 2 hours long initial phone conversation to perform with us the Chemo and the Stemcelltransplant in the UK. This is a success. The Hallwang Clinic offers supplementary/supportive therapies but only as supplementary/supportive therapies - meaning every patient knows that there is, if, only a supportive aspect given and that supportive therapies are of course not cancer therapies. The Hallwang Clinic is not using supportive therapies as cancer therapies.

                "Up until 2014 “Hallwang Clinic” was called “Privatklinik Dr. Ursula Jacob” [1] : the name of the medical-director of that “oncology clinic”. If Hallwang's Dr. Ursula Jacob has formal qualifications as an oncologist she has omitted to include them on her résumé.[2]"

Gnotlin (talk) 01:09, 4 December 2018 (UTC) Dr Ursula Jacob was the director of Privatklinik Dr Ursula Jacob. She was not the medical director of the Hallwang Clinic. She was not an oncologist.

                'One of Dr. Jacob's famous cancer patients was the American actress Farrah FawcettWikipedia's W.svg[3].'

Gnotlin (talk) 01:09, 4 December 2018 (UTC)correct A more recent famous customer at Hallwang Clinic is the English actress Leah Bracknell.Wikipedia's W.svg (Suspension-of-disbelief is required by actors in their workplace, apparently some have that mindset permanently). Gnotlin (talk) 01:09, 4 December 2018 (UTC)The problem is that due to data protection no feedback to patients at the Hallwang Clinic can be given. So leave it.

                "Hallwang Clinic GmbH" has been in existence since 2007, and they state that they have had "over 7,000 patients"[4], but you'll have a hard-job finding internet-posts by any of those 7000 claiming they've been cured by visiting Hallwang.[5]

Gnotlin (talk) 01:09, 4 December 2018 (UTC) this refers to Dr. Ursula Jacob. The Hallwang Clinic would never and has never claimed this. Gnotlin (talk) 01:09, 4 December 2018 (UTC) Your citation- as you can see in the slide cited by yourself is referring to Dr Ursula Jacob Privatklinik and not to Hallwang Clinic

                "The clinic is not limited to treating people with cancer: patients with a wide-variety of disorders, including multiple sclerosis, chronic fatigue syndrome, diabetes, meningitis, irritable bowel syndrome, etc., have received live cell therapyWikipedia's W.svg at Hallwang Clinic. Specifically, they are injected with "fresh" live sheep-fetus cells.[7]"

Gnotlin (talk) 01:22, 4 December 2018 (UTC)ALSO here you are citing Slides from the Privatklinik Dr Ursula Jacob, and then you are saying that these are slides from the Hallwang Clinic - ?!

                "However transplanting sheep cells is a baaa…d idea, as they would be rejected by the human immune system, and would never survive in a person, so could not be "regenerative". So such xenotransplants are doomed to failure, and have some risk attached via the immune-response to the foreign material injected, and possibly via transmission of zoonotic disease.

Gnotlin (talk) 01:22, 4 December 2018 (UTC) I totally agree that this is non-sense, the Hallwang Clinic is not doing it. And your are citing again the slides from the so-called Dr. Ursula Jacob Privatklinik

In conclusion, it is a really superficial and false research that became obvious in the present article about the Hallwang Clinic - since you are mainly citing slides from a former alternative clinic that has used indeed the same buildings in the past . To an extensive degree articles like respectful insolence or sciencebasedmedicine belonging to the same author are doing to same mistake - they are just copying wrong information amplifying fake news until the one site is referring to the other site as a valid source of information. This is about the quality of your reference to "respectful insolence".

If life would be so simple to follow this "superficial rational logarithm" than one might just rent a former office of microsoft and you would think I would be suddenly the CEO of microsoft =)))))


BUT the good thing is - we have the chance to correct this. The question is only whether you are open to unblock your article so that we can work on it, discuss changes and develop a correct article - respecting your criticism about supportive therapies, which I even share. If you thought it might be good idea to combine a story about the previous clinics that have used the buildings at the Silberwaldstr. in Dornstetten then one should mention the Waldeck Klinik, a rehabilitation center, that was prior to the alternative "Privatklinik Dr. Ursula Jacob" in these buildings. Lateron, in 2014 the Hallwang Clinic rented the buildings as a board-certified oncology clinic. But then please make the difference between before 2014 and after 2014. Thank you Gnotlin (talk) 02:05, 4 December 2018 (UTC)

    Your edit was reverted because: 1) Your edit was not well-written. 2) We do not take seriously unscientific appeal to celebrity or anecdotal evidence here as you seem to do. If you want us to take you seriously, you need to cite peer-reviewed clinical studies that support the protocols used at the clinic. Bongolian (talk) 05:41, 4 December 2018 (UTC)

    @ Bongolian: the Article is using false citations - the article is invalid in itself. As you can simply check it by clicking on the links (see above) - you will see the author has used sources, slides, links from another clinic - Dr Ursula Jacob Privatklinik and claims that these links would present any Information about the Hallwang Clinic. — Unsigned, by: Gnotlin / talk / contribs

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Yulli

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Re: "Hallwang clinic" in Dornstetten
« Reply #24 on: December 06, 2018, 07:47:14 PM »

Email sagt: NICHTS IST MIT WHYITEWASHING! Das BMJ hat einen Rundumschlag gelandet.


I DO HOPE THAT THIS POST BY X-MOL WILL PREVENT MILLIONS OF DOLLARS (AND POUNDS STERLING, EUROS, AND OTHER CURRENCIES) FROM BEING RIPPED OFF BY THAT SATANIC CLINIC.

THE STORIES ARE HEART-BREAKING.


New employees in the clinic? Who gives a damn about that!? They are expendables. Hire and fire! The owners, that is what counts. Look for the owners! Look at the managers!

http://www.x-mol.com/paper/813851

[*quote*]
当前位置: X-MOL 学术 › BMJ › 论文详情
Is cancer fundraising fuelling quackery?
The BMJ ( IF 23.259 ) Pub Date : 2018-09-12 , DOI: 10.1136/bmj.k3829
Melanie Newman

Crowdfunding sites are helping people with advanced cancer spend thousands of pounds on unproved and alternative treatments. Melanie Newman examines calls to help ensure patients and their donors are not being exploited
Doctors face difficult conversations with patients with metastatic cancer for whom NHS treatment has failed. A growing problem is how to advise patients who opt to pursue expensive, experimental treatments in the private sector, including orthodox therapies given in unproved combinations and doses but also alternative therapies with no evidence behind their use. The BMJ today publishes figures that show how crowdfunding for alternative cancer therapies has soared in recent years (tables 1 and 2). The figures, collected by the Good Thinking Society, a charity that promotes scientific thinking, show that since 2012 appeals on UK crowdfunding sites for cancer treatment with an alternative health element have raised £8m (€9m; $10m). Most of this was for treatment abroad.
Total raised by GoFundMe and JustGiving by country of clinic or treatment up to 1 July 2018
Amount raised by date fundraiser was opened
JustGiving’s own figures show more than 2300 UK cancer related appeals were set up on its site in 2016, a sevenfold rise on the number for 2015.
The phenomenon has allowed less well-off patients to access expensive, experimental treatments that are not funded by the NHS but have some evidence of benefit. But many fear it has also opened up a new and lucrative revenue stream for cranks, charlatans, and conmen who prey on the vulnerable.
The society’s project director, Michael Marshall, says: “We are concerned that so many UK patients are raising huge sums for treatments which are not evidence based and which in some cases may even do them harm.”
Hundreds of thousands of pounds have been crowdfunded for UK patients’ treatment at the controversial Burzynski clinicin Texas, which US authorities have pursued for years over its marketing of unproved treatment and research trial failings. The US Food and Drug Administration issued warning letters to the clinic in 2009 and 2013 listing numerous concerns about the clinic’s research trials, including failure to report adverse events.12 In 2012 the clinic was criticised by the FDA over violations of regulations relating to claims on the clinic’s website,3 and in 2017 the clinic’s owner was sanctioned by the Texas Medical Board for misleading clients.4
Other appeals included in the dataset were for Gerson therapy, which involves coffee enemas and frequent juice drinks and is not only unproved but can harm patients.5
“If these platforms want to continue to benefit from the goodwill of their users—and, indeed, to profit from the fees they charge each of their fundraisers—they have a responsibility to ensure that they do not facilitate the exploitation of vulnerable people,” Marshall said.
JustGiving charges a fee of 5% on donations, and GoFundMe did the same until January 2018, when it became fee-free.
Good Thinking wants the crowdfunding sites to vet cancer appeals and “reject outright proposals that refer to specific drugs that have been discredited, extreme dietary regimes, intravenous vitamin C, alkaline therapy and other alternative treatments.” Marshall says: “If a fundraiser is for treatment for a serious or life threatening condition such as cancer, it ought to be reviewed before it is sent live, especially if it contains terminology that raises red flags for quackery.”
Edzard Ernst, professor of complementary medicine at Exeter University, supports the move, pointing out that crowdfunding organisations already reject appeals involving violence or illegal activity. “Crowdfunding for a terror attack is out of the question,” he said. “Crowdfunding for cancer quackery is not any better and must be stopped.”
GoFundMe, the platform that features most prominently in Good Thinking’s dataset, said it is already “taking proactive steps” in the US to make sure users of its site are better informed and will be doing the same globally over the coming months.
“Ultimately, we'll be monitoring content of this kind more closely in order to provide tailored advice,” a spokesman said. But JustGiving told The BMJ, “We don’t believe we have the expertise to make a judgment on this.”
Any moves to limit fundraising for alternative therapies by patients with terminal cancer will attract the ire of people like Sarah Thorp. She set up a GoFundMe account to pay for her sister Andrea Kelly’s treatment at the Integrative Whole Health Clinic in Tijuana, Mexico. The clinic offers a range of alternative therapies, including coffee and flax seed enemas, vitamin and mineral infusions, and an “Alpha-2010 Spa System” alongside whole body hyperthermia, hyperbaric oxygen, and “extracorporeal photopheresis.”6
Its lead clinician, Jose Henrique, claims a “75% success rate” since 2000 in patients with stage 4 cancers like Andrea.7 Andrea spent three weeks at the clinic at a cost of $21 000 (£16 000; €18 000) and died just over a year after she returned.
Although the sisters became “disillusioned” with the clinic and ended the treatment a week early, Thorp tells The BMJ thatshe remains convinced the trip extended Andrea’s life. “It gave her hope at a point when we had none,” she says. Andrea’s faith in the NHS was damaged after she felt her concerns that the cancer had returned were repeatedly dismissed by her doctors. When the disease was finally detected Thorp claims her oncologist was unsympathetic.
She believes Andrea was helped as much by the feeling of being in control as by the treatments she received. “That empowerment was so useful,” she says. “That was not false hope.” The very process of searching for alternative therapies had a positive effect, Thorp believes. “She was always looking into new things; it kept her going. Doctors shouldn’t disregard or be pessimistic about people exploring these options.”
Working out how best to protect patients and donors—while supporting their informed choices—will be no simple task for the crowdfunding platforms, as David Gorski, a US surgical oncologist who campaigns for evidence based science, explains.
“I support the concept of not allowing crowdfunding for treatment at quack clinics but must admit that I struggle to see how it would work in practice for some of these centres,” he said. “How would they deal with clinics that offer conventional treatments alongside quackery?”
Alternative centres do not usually publish data on treatment efficacy but instead provide testimonials, in which patients often describe being given a short time to live before starting the treatment that “saved” them. “Patients often don’t understand that not enough time has passed to say with any confidence that they are survivors,” Gorski explains.
The largest sums by far in Good Thinking’s dataset, accounting for £4.7m of the £8m identified, were ostensibly raised for trips to the Hallwang Private Oncology Clinic in the Black Forest of southern Germany. The clinic claims that some people have used Hallwang’s name to raise money but have not then proceeded to treatment and, in some instances, have done so without ever contacting the clinic.
The Hallwang carries out diagnostic tests on patients’ tumours and treats them with a combination of experimental immunotherapy, peptide vaccines said to train the immune system to attack cancerous cells, and unproved therapies such as vitamin infusions.8 Drugs offered include bevacizumab, which inhibits growth of tumours’ blood vessels, and pembrolizumab and ipilimumab, two members of a new class of biological therapy known as checkpoint inhibitors. All three drugs have proved benefits for certain types of tumour.
Costs are high: a patient was recently quoted more than €100 000 for an initial 10 day visit.9 However, the clinic states it offers intensive treatment monitoring, with a nurse to patient ratio of 1:2, in a highly private setting and in extremely challenging situations. It says many of its patients arrive with serious complications such as sepsis, tumour associated bleeding, or bowel obstruction, which it treats and manages. It also says that its innovative treatments are purchased at a high price, and because the costs are not met by any third parties such as insurers or charities, they have to be paid by patients. It insists patients only pay for and are given treatments after thorough discussion and with the patients’ explicit approval and consent.
Christian Ottensmeier, professor in experimental cancer treatment at the University of Southampton, has been approached by and treated former Hallwang patients. He uses some of the same immunotherapy drugs prescribed at the Hallwang in his standard clinical practice but in different doses and combinations.
“In my experience 20-25% of the Hallwang’s patients with advanced cancer could see some benefit from taking them,” he says. The Hallwang also uses the drugs for diseases in which they have not yet been tested. “I don’t have a problem with that,” says Ottensmeier. “But it needs a careful conversation with the patient about the chances, the risk, and the costs.”
The Hallwang says that when referring to treatment outcomes, it is important to distinguish between partial and complete remission, and that in cases where life expectancy is only a few weeks or months, a gain in quality of life or being given a few extra months to live is considered a success and something that patients are happy with. The clinic does not publish survival rates.
Ottensmeier does not think Hallwang patients should be banned from crowdfunding pages but says that patients and their donors must be much better informed about what they are paying for. The fundraising sites suggest that some Hallwang patients have had exaggerated notions of their prospects of long term survival. Anastasia Leslie’s Buy Another Day GoFundMe page said she was told by the Hallwang that “all of the ovarian cancer patients (approx 20 to 25 per year in the last 15 years) … are still alive, doing well and in remission.” Despite apparently spending £100 000 in just one week10 at the clinic, her death was announced on the funding page within months of her first trip to Germany. Her appeal raised £155 000.
Rekha Banerji’s appeal for her daughter Rebecca, who had stage 4 breast cancer, said: “Although in the UK, this is a hopeless case, the German doctors are extremely confident Rebecca will gain full remission.”11 The appeal raised £14 645, but her daughter also died within months of starting treatment, according to her GoFundMe page.
The Hallwang maintains that it never gives guarantees to patients and always provides thorough information on its alternative treatment strategies, which it says are state of the art.
Ottensmeier also questions Hallwang’s prices. “For a much smaller sum you can buy the same immunotherapy drugs and have them administered in the UK,” he says.
Patricia Peat, a former oncology nurse who has advised people (box 1) to go to the Hallwang after visiting the clinic herself, says she has now stopped recommending it to her clients.
Sally Major had stage 4 bowel cancer diagnosed when she was 32, after her concerns were repeatedly dismissed by the NHS. The youngest of her four children was just 2 years old.
Sally and her husband, Liam, sought the advice of former oncology nurse Patricia Peat, who now runs Cancer Options, a Nottingham based consultancy that claims to help patients navigate alternative approaches to the disease. Peat recommended the Majors go to the Hallwang Private Oncology Clinic in Germany.
There was a catch though—the Hallwang was extraordinarily expensive. Peat advised it could cost around £80 000. Over the course of the next year, the family spent more than four times that: £350 000, Liam tells TheBMJ. They re-mortgaged their home, took out bank loans, sold their car, and set up an appeal on the crowdfunding site YouCaring.
As the year went by Liam’s pleas on the site and in the media, which covered Sally’s quest and the fundraising effort extensively, became increasingly desperate. “This week has cost us €26 000...our money has finally run out,” he said in a Mirror story in March 2017.12 “Sally can barely stand ... we’re not able to get her home. Equally we can’t afford to stay here so have no option. I am literally begging.”
A few weeks later Sally died while still under treatment at the Hallwang. Less than a year had passed since her first visit.
On Sally’s first visit to Germany in July 2016, Liam was taken aback by the Hallwang’s charges. “We spent around £1000 a day on top of the treatment costs,” he says. But the Hallwang advised that its staff had experience of his wife’s particular cancer and that they hoped to put her into remission, so he wasn’t going to argue over money. “They told us positive stories and never mentioned anyone who had died,” he says. “I did ask for figures on survival rates but was told patients did not want to share their data. If I wasn’t in a desperate situation I might have asked more questions.” He was also asked not to show or discuss his invoices to anyone else, which he thought was “not right.”
The peptide vaccine treatments were the single biggest cost, at €11 000 each, he says. These were not administered by the clinical staff but by clinic manager Maike Luz. The Majors were not told exactly what was in them. “Maike came into Sally’s room on one occasion to give her a vaccine we hadn’t asked for. I stopped her,” Liam says.
The experience of another crowdfunded patient, Claire Cunningham, dispelled his doubts. Claire arrived at the clinic with advanced breast cancer in November 2016 unable to walk or talk and having been offered end-of-life care by the NHS. She recovered sufficiently to return to work and her testimony features on the Hallwang website. She was one of a group of 14 patients, including Sally, who bonded as a group through their shared Hallwang experience.
Today, Claire is seemingly the only one of that group left alive. The BMJ was unable to speak to her but it was reported earlier this year that tumours had returned to her lungs and spine and she was very ill.13
“There’s one man who spent €1.5m. His wife got an extra two or three months,” Liam tells The BMJ. He believes Sally’s treatment bought her “four or five months” and dismisses the suggestion that the extra time Hallwang patients seem to have bought may simply reflect the challenges of making an accurate prognosis. When he first took his wife to the Hallwang “she was about to die,” he says. “I could see that. And she did improve.”
Around two weeks before Sally died Liam asked the Hallwang’s senior oncologist Jens Nolting to re-test her tumours to see if any other drugs might be suitable.
“He agreed to it,” Major says. The cost was around €17 000. “A different doctor pulled me out of the room and told me if the treatment Sally was already receiving didn’t work there was nothing else left to try, so we didn’t go ahead.”
Despite all the energy the Major family and friends spent on fundraising, the family was left £70 000 in the red after Sally’s death, forcing Liam to set up a new appeal to help cover these debts.
If he had a second chance he says he would speak to the clinic about its costs before going ahead.
The fact that patients’ families will pull out all stops to get the treatment is part of their business model, he suggests, because if it were not for crowdfunding people wouldn’t be able to raise the funds.
He now thinks the crowdfunding sites should carry warnings or provisos about alternative treatment centres like the Hallwang.
“Having that support from someone who had been involved in a number of cases would have made me think twice. And I’d have been asking questions at the Hallwang rather than just handing over money.”
“The lack of transparency and communication about both costs and how long they may offer treatment for at the outset is both confusing and misleading,” she tells The BMJ.
Families who embark on treatment at a clinic and are then subject to increasing costs without a clear idea of the likely outcomes are put in a “massively difficult and emotive position,” she says. “The Hallwang is the worst example of this I’ve come across.”
Peat also supports the Good Thinking’s call for crowdfunding vetting. “Something has to be done,” she says. “The pressure on families to achieve a target is enormous. It’s morally unacceptable.”
Newspaper and TV reports on people with cancer drive donors to the crowdfunding sites, sometimes attracting the attention of celebrities, who boost funds. They also encourage others to seek the same treatment. “These reports may look like uplifting human interest stories, but the reality can be much darker,” says the Good Thinking Society’s Michael Marshall. “They rarely highlight the dubious and pseudoscientific nature of some of the treatments involved or just how many of the success stories actually ended in tragedy.”
Many stories follow a familiar narrative: a tragic patient, with everything to live for, is on the mend after “miracle” treatment denied them by the NHS. Gemma Nuttall is one example. The Daily Mail and ITV 1415 reported the young mother was now “cancer free” in February 2018, a few months after treatment at the Hallwang clinic, which was funded in part by film star Kate Winslet. Sadly, a recent update on Gemma’s GoFundMe page said the cancer had returned. This has not been reported.
“If the media want to report on medical fundraising stories, they should seek the advice of qualified medical experts,” Marshall said.
Competing interests: I have read and understood BMJ policy on declaration of interests and have no relevant interests to declare.
Provenance and peer review: Commissioned; externally peer reviewed.
更新日期:2018-09-13
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